It's Time to Take Back April! Autism Acceptance Day and Month. 2017: Two events- April 1-15 going on NOW at https://www.facebook.com/events/228936064515212/, and second half of the month event here: and https://www.facebook.com/events/588631584829848/ ACTUAL ACCEPTANCE, not "tolerance," not "I accept you but not your autism." The intention is *radical* acceptance, not ABA, not compliance training, not "fitting in," unless we make that decision on our own.
I used to participate in Autism Awareness Day. This is the first year that Canada is
participating in the U.N. Autism
Awareness Day. I now participate in Autism Acceptance Day/Month (click on the link to see the origins).
It seems like this day has been taken over by a large
fundraising, research organization. All
of the fundraising, Light It Up Blue initiative, advertising etc. makes it
seems like Autism Awareness Day should be called Autism Speaks Day.
Over the past year or so, I have been pulling away from the
whole Autism Speaks thing. I have
learned a lot by reading blogs of other autistics and supportive
advocates. I have always accepted my
autism but haven’t completely understood everything about how it affects
me. I still don’t understand it
I do not want a cure for my autism. I would never have an amniocentesis to see if
my fetus had autism either (whenever that test is developed or hopefully it
won’t be!). Just as I never did when I
was pregnant with my daughter to check for Down Syndrome. If our child was born with a disability, so
It turns out that our daughter was born with a disability-autism, the same as me and my husband. When she was diagnosed, it was a relief to
know why she is the way she is. It’s not
a bad thing, it just is. Sometimes I
ask her why she has done, said, or thought something, and she will say “because
I’m Micah”. She does things the way she
does things just as I do things the way I do them. It’s not bad just different. There are times when she or I want to do
things the same way as other people but other times we do it our way whether
other people think it is right or not.
We have always encouraged our daughter to be herself.
Accepting her as she is does not mean not helping her. She has had a lot of occupational therapy, mainly
to help with sensory integration. She
also has other therapies to teach her to how to ask for help or other things
but they were done in a fun way through play and not sitting still at a table
with her hands still. She used to fall
off her chair regularly because she was so squirmy and couldn’t just sit. I think it was too much just to sit and eat
dinner. As she has gotten older she is
more settled and we allow her to read while she eats so now she just sits and
doesn’t fall off the chair anymore.
Some people think it is rude to read at the table but that is what she
The therapies we have done do not change who our daughter is
but help to give her the skills that she can use to get her needs met whether
those needs are written down or spoken. We have
written in her IEP that she is not to be forced to give eye contact. If she is comfortable with you, then she is
able look at you depending on what else is happening. I am the same way.
Again, I wouldn’t take a cure for my autism but I do need
support in the areas I struggle with. The
problem is that those supports don’t really exist except for a few places where
you have to pay a lot of money, especially if you need long term support with different things. We are not rich. We get little bits of help every now and then
but we put most of our resources into our daughter so she can grow up to be as
independent and happy as she can be.
A very large autism organization gets loads of fundraising
dollars especially at this time of year but most of the money goes to research
on how to prevent and cure autism so there won’t be autistic “burdens”
anymore. If they really want to help
families, they could spend the funds on support for the autistic person in the
ways that the person needs it.
Many people are “aware” of autism. What is needed now is acceptance that
autistics exist and always will; that we need jobs, healthcare, respect, love,
happiness, and understanding.